Disease management web portal tracks ADHD patients in real time

It started with a chance encounter at a conference. Eugenia Chan, MD, MPH, and Eric Fleegler, MD, MPH, both worked at Boston Children’s Hospital, but had never met.

Dr. Chan, a pediatrician in Developmental Medicine, mentioned she was looking for a way to measure how well patients with attention deficit hyperactivity disorder were responding to their medications. Dr. Fleegler, an emergency physician and health services researcher, mentioned an online software program he developed to screen patients for health-related social problems and connect them with relevant services.

Two years later, Drs. Chan and Fleegler launched ICISS, the Integrated Clinical Information Sharing System, which monitors patients with ADHD and their changing medication responses. Parents, teachers and coaches fill out web surveys about the child’s symptoms and behavior between doctor visits. A physician can log in and have instant access to this information in graphical form that shows trends overtime that help them make decisions about treatment regimens or visit frequency. The system also saves 10 minutes of valuable appointment time of valuable appointment time asking basic questions about how the child has fared.

More than 1,700 patients now use the software, and Dr. Fleegler is planning to develop online tracking programs for neurology, psychiatry and adolescent medicine in the future.

Boston Children’s Technology Development Fund has invested in the development of ICISS. For more information, or to learn about partnership opportunities related to this technology, please contact the Technology and Innovation Development Office by email or phone at (617) 919-3019.

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